![]() PHE also uses your information to ensure you receive high quality care and to improve the screening programmes. The NHS screening programmes use personal information from your NHS records to invite you for screening at the right time. It is completely up to you, and will have no effect on your care. Please tell your midwife if you want to take part or not. You may be contacted by researchers and asked to take part in research linked to newborn blood spot screening. This involves replacing an unhealthy gene in your baby’s body with a healthy one. Some types of SCID respond to gene therapy. If tests show your baby has SCID, a bone marrow transplant can fix their body’s defences against infections. Treatment for SCID is far more likely to be successful if started early, rather than waiting until a baby becomes ill. The BCG vaccine will only be offered if it is safe for your baby to have it. This is because treatment for SCID is more complicated if a baby has had the BCG vaccine. The BCG clinic will check your baby’s SCID screening result before giving it. Some parents will be offered the BCG vaccine for their baby. One of the aims of the SCID evaluation is to find out how many babies are in each of these 3 groups.
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